Maybe it’s the fact that my daughter just turned two but
lately I’ve been thinking a lot about how blessed our little family is. And how
blessed in general our life is. A lot of my posts talk about the struggles and
fears that go along with the Sotos Syndrome diagnosis, but not today. Today is
about Happy. Today is about celebrating all the ways our lives have been made
beautiful by a child who just happens to have Sotos Syndrome. Today I’m going
to share moments.
I think sometimes we
get caught up in the big moments that we forget to cherish the little ones. We
forget to look down from our careers, our ambitions, our fears, our own
internal dramas and we miss those little seconds of perfection. I’ve caught
myself doing that a lot lately, but not anymore. Those little moments are
priceless and they don’t last forever. My career can wait… this life with our
child is too important to miss.
If
I could’ve sent a message to myself a year and a half ago when I first heard
the words Sotos Syndrome, it would’ve been this post. I would’ve told myself
that for all the scary moments there are hundreds of happy little moments just
like these. For all the uncertainties there is hope. For all the struggles there
are triumphs. I would have told myself that a life is made in little moments
and our little moments are beautiful.
